What is Keratoconus?

Keratoconus is an eye condition affecting the cornea. This is the clear window at the front of the eye. The cornea normally has a regular curved shape. This helps to focus light onto the back of the eye (retina) and form a clear image. In keratoconus the cornea becomes conical or irregular in shape which distorts vision.

Why do I need contact lenses to see?

In the early stages of keratoconus glasses can be used to give a good standard of vision. If the condition gets worse the cornea becomes more irregular in shape so glasses may no longer work. Contact lenses give better vision as they help correct the distorted vision.

What will happen on my first visit?

On your first visit we will look at the health of your eyes. We will take some measurements of the shape of your eyes. We will explain the fitting process and the options available. We will discuss whether contact lenses are a suitable option for you. We may try some lenses in your eye(s) to find the best lens to order for you. Please allow up to 2 hours for this first appointment.

Contact lens fitting for keratoconus is done by a specially trained optometrist. It needs great patience from both the optometrist and the patient. It is important to realise that, unlike contact lenses to correct long or short sight, the fit may not be right first time. In keratoconus everyone’s contact lens fit is different and may change over time. If the fit is not right another set of lenses may have to be ordered.

What types of lenses are most likely to be used?

In most cases we use hard lenses made of a material which allows oxygen to pass through it. These are called Rigid Gas Permeable (RGP) lenses. These usually give the best standard of vision. They are easy to put in and take out and are relatively easy to look after. All contact lens wear increases the risk of an eye infection. This risk is less with RGP type lenses. RGP lenses are often a little uncomfortable at first but this becomes less as time goes by.

What other lens types can be used?

If a different lens type is suitable for you, the contact lens optometrist will discuss the options with you.

Will I have to pay for my contact lenses?

If you are entitled to an NHS Optical voucher, lenses may not have any cost. If you are not entitled to a voucher, you will be asked to pay a charge for the lenses. This charge is set by the government and is reviewed every year. It is often only a fraction of the true cost of such complex, individually made lenses. You will need to show proof of exemption or pay for the lenses every time before ordering.

How will I care for my contact lenses?

You will be taught how to care for your lenses. It is important that you follow any instructions given.

Further information

www.keratoconus-group.org.uk

www.rnib.org.uk

 

Confidentiality

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For further information on confidentiality contact the Information Governance Team:

Information.Governance@ncic.nhs.uk | 01228 603961

Feedback

We appreciate and encourage feedback, which helps us to improve our services. If you have any comments, compliments or concerns to make about your care, please contact the Patient, Advice & Liaison Service:

pals@ncic.nhs.uk | 01228 814008 or 01946 523818

If you would like to raise a complaint regarding your care, please contact the Complaints Department:

complaints@ncic.nhs.uk | 01228 936302